When I saw Bek on Tuesday she was so listless. She couldn’t focus on who I was or communicate much at all. When I went in to see her yesterday she was completely different and so much better!
She was able to talk somewhat, but that trach in her throat makes it hard. Basically, you have to try to figure out what she is saying through lip reading. It wasn’t too bad, but a couple of times I was having a hard time understanding her. I think through my extensive experience at trying to decifer toddlerspeak, I was able to figure out most of it. It’s a different skill set, but similar enough! So we had a conversation…something that five days earlier wasn’t possible.
She was moving around…both arms, which it took awhile for her to start moving on her right side (tumor side), so that good. She doesn’t seem to be able to see with her right eye and she has short-term memory problems, which will hopefully resolve themselves with time.
It was apparently news to her that she had a brain tumor, so her Dad had to explain that to her (which I’m sure he had done before…memory issues). She said that she was quite the *itch before her surgery, so she was realizing that her personality changes were the result of her tumor.
She said she liked most of the nurses, but there were a few strange ones she didn’t like. She also hit on one of the male nurses. Gettin’ that spunk back!
It was a nice visit. I sat there with her and her dad for about an hour on Sunday afternoon. Having a conversation with her was more than I hoped would happen when I pulled into the parking ramp in downtown St. Paul yesterday. Time will tell…but right now she is doing so much better. For almost losing her a few times, the eyesight and memory loss seem like such small worries.
I’m glad to hear she’s improving. I agree, some loss of sight and memory is small beans compared to the alternative!
Thanks, Alissa. We are all definitely breathing easier now…I feel so much for her parents. Having kids gives you a whole different perspective on what they are going through.
[…] Hopefully, this will be her last major surgery. Hopefully, her eyesight will come back, but I know she has been visiting a few blind centers to teach her how to deal with the lack of eyesight. She has been through so much already. […]