Baby Boy T.

I first posted this picture here.  I took this picture a scant 4 hours after his birth.  The fact that he was alive was defying his doctors, who did not expect him to breathe on his own.  Although small, he appeared to be a normal little man despite his medical condition.  I was hoping that the fact that he was born on Easter was a good omen.  Hoping so much that this was a sign that despite the breaking down in his body, he would be reborn into something more.  A survivor.

He is continuing to fight the good fight, slowly growing, and at almost 3 months old he is 8 pounds 3 ounces.  Unfortunately last weekend he had a visit in the hospital.  He has been urinating out his bodily fluids, and the doctors believe his pituitary gland is not working properly.  He’s had some seizures, and bad acid reflux to top it off.  Right now he is on Xanax and Valium, with another visit this week to the doctor to determine if they can change his meds.  In his short life he has gone through so many tests.  Thankfully most of his time has been spent in his home with his family, and not in a sterile hospital. 

Please pray for this sweet little guy.  He has beaten the odds by surviving, we hope he beats them further by thriving.  Good news is that his skull did not fuse, as after his brain began to get smaller the plates began to overlap each other.  He is also more comfortable now that his acid reflux is getting under control with the Xanax. 

Today’s Theme Thursday at Picture This is beginnings.  I thought this photo encapsulated both the joy and the angst in that word.